

As you all know, Shane has a rare form of thyroid cancer called Medullary Thyroid Carcinoma. This cancer can either be sporadic or familial. His happens to be familial.
Ethan and Dan were tested two weeks ago. The results showed that they are positive for the ret-onco gene mutation. Their specific mutation is called Men-2 A. So along with the Medullary carcinoma, they are at risk for other adrenal type cancers.
Fortunately, there is something that we can do. To prevent the children from getting the MTC, they will need to have their thyroids removed. Ethan will have his taken out soon, and Dani may be able to wait until she is 5.
We are working with a team from Penn and we will find out more information from our appointment at the end of March.
Ethan and Dani do not know what is happening yet. We will tell them when we feel it is necessary.
We appreciate the love and support from our family and friends. Thank you from the bottom of our hearts.