Last night we came home from CHOP. We thought it would be this morning but we got a very nice surprise. Ethan is doing great!! He has no pain and the bruising on his neck is going away. He does have strips across the incision and they will either fall off on their own or when we go back for a follow up, the ENT will remove them.
The hospital stay wasn't too bad. We both got very little sleep, doctors and nurses coming into the room frequently. Ethan was very weepy during our time there. He was upset about all of the tubes and wires and desperately wanted to be home with Dani and Shane. I tried all my tricks to get him to play a game, color or even play his beloved DS. He wanted no parts of anything. We went for a couple walks around the floor and went to the playroom for a little while. He was very quiet and withdrawn. Anyone who knows Ethan, knows that he is vibrant and full of life. It was very upsetting seeing him that way.
As soon he he was told about going home, he perked up. We packed all of his belongings and new presents and came home around 6:30 last night. Ethan's spirit was returning. It was so precious watching Dani and Ethan see each other for the first time. They ran to each other and gave big hugs. It was very sweet. Now we are at home relaxing and happy.
During the surgery, Ethan's nerve to his left vocal cord became strained. We don't believe that this is permanent. His voice is softer and a couple octaves higher.
We thank everyone for their love and support. It means the world to us. I am so grateful that this is over. It wasn't easy for Shane and me to see Ethan go through this, but I know it was the only choice and now we will not have to worry about him getting MTC.
