The doctor did tell us that the clinical trial she is opening will start within the next month. Shane will be a candidate for it only if he has a 20% growth from his initial scans. If his growth is not at 20% then we wait another 3 months and have repeat scans.
As for the kids, we have 2 appointments next week. On Wednesday, they will both get ultrasounds of their thyroids. We may end up having to sedate them, as I am sure they will not lay still for a stranger to rub a cold instrument on their necks. It should be very interesting. We also have an appointment with an ENT at CHOP on Friday. All the doctors that we have been dealing with all agree that he is the best ENT for the job. This makes us feel much better.
After 5 months, I still can't believe that this is happening, not only to Shane but our children as well. Fortunately, the kids seem no worse for the ware and Shane is unbelievable. He has such a wonderful attitude, and is facing this head on. His spirits are great and physically he says he has never felt better. He is my hero!!!
As we get more information, I will blog more. Thank you again, all our family and friends, for your wonderful support. We are a very lucky family.
Hi Jodie, Keeping you and your family in my prayers....
ReplyDeleteJod, thanks for keeping us updated. You are a graceful and amazing wife, mother, and friend. We love you! xoxo
ReplyDelete