We have to be at CHOP by 11:15, which means that surgery probably won"t begin until 1ish. It is looking like a very long day! She still doesn't know as of yet. We don't want to give her anymore anxiety than we have to. We will tell her tomorrow, and I am hoping that Ethan will be a big comfort to her since he has already been through this himself. I am extremely nervous for this week. Dani has been very clingy to me lately and I know that she will be even more so while in the hospital. But hopefully, everything will go as smoothly as it did with Ethan and she will be home by Wed night.
As far as Shane goes, we went to Hopkins a couple of weeks ago to complete a battery of tests and scans for qualification purposes for the clinical drug trial. Shane's oncologist seemed optimistic that he would qualify for the study. but we would have to wait and get the final word from the drug company as they have to review all of the data. On Thursday, I received a call from the Dr, telling us that the drug co. denied Shane. To qualify, the patient must have at least a 20% growth within a 13 month period. Shane's oncologist feels that he has a 26% growth and the drug co. feels that he has a 7% growth. Obviously there is a huge discrepancy! The Dr. wants to discuss other options, while I want to challenge the drug co. findings. However, this will have to wait a couple of weeks while Dani is taken care of.
As soon as we have info on Dani, I will blog more. Thank you all for your kind words and well wishes!
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